JCDL 2026Accepted
Lives of the infamous: Identity linkage potential and everyday information practices among people living with HIV
The 2026 ACM/IEEE Joint Conference on Digital Libraries (JCDL '26)
Based on participant observation and 22 semi-structured interview sessions with 20 participants, including 16 people living with HIV, this study develops identity-linkage potential: the situated possibility that an audience can interpret an everyday cue as evidence of HIV status. It traces three interwoven practices—regulating engagement with information, navigating identity-linked information flows, and translating information into everyday life—showing how anticipated linkage can make even accurate, trusted information difficult to act on. The findings offer design directions for privacy-sensitive access, low-visibility participation, and multiple routes from information to action.